[Live Human Library]

I can tell you that I have never regretted my experience over the years. On this road to rehabilitation, many professionals have joined me and extended a helping hand to support me...

I was originally a young man who loves sports, but on one birthday one year, the doctor confirmed that I was suffering from hereditary rare cerebellar atrophy. At that moment, I suddenly felt that I had nothing. After checking the disease online, I told many people that it was incurable. There will be no one day of recovery, and the body will only get worse and worse, and it will continue to torment until the end of your life...

Because my illness is a downward slope, but I only walked a quarter of a road. Although I don’t know the situation for a year, the most important thing is to grasp the time and accomplish more meaningful things with my limited life. Cherish every minute and every second. , Do more of what you want to do!

Dennis joined the clothing industry after graduating from Form Five. He started as an ordinary shipping clerk. He continued to work hard to learn and accumulate experience and then became the management. Later, he tried to start a business and became the backbone of his family's economy; He suffered a stroke in his left brain while blogging. The mobility of his right body was not as good as before. He could only end his own business. Sung-il would ask himself "Why did he choose me?" He was enveloped by a sense of powerlessness and the pressure of life. , All day in the abyss of pessimism, do not want to face the future...

It has been confirmed that he suffered from brain tumors, muscular dystrophy, and the rapid decline of body functions in recent years requires wheelchairs to travel, and difficulty swallowing.

Gradually moving from extroverted to full paralysis, Angel chose to live a rainbow in the dark and seize the opportunity to practice her life list. I hope to use my own experience to encourage people who are in difficulties or troughs, and appreciate the beauty of life with everyone.

I was born in a well-off family, my father is a businessman, and my mother comes from a big family of knowledge, book and courtesy. There are 6 brothers and sisters in the family, and I rank 5th. A home that seemed to be beautiful, but it was overcome by a disease. This disease is called cerebellar atrophy. When he was about 6 years old, his father was in his 40s. He suddenly became ill. He stumbled while walking. He had to walk around with a table and chair at home, like a spider. After that, he couldn't control his voice. We always felt that he was talking violently. Gradually, no one talked to him anymore. Later, I had difficulty writing and speaking more vaguely, and the business ended. He sat on the chair in silence by himself, and died at the age of 60. When he passed away, the doctor said he was suffering from depression. This is the early 1960s.

I have been suffering from spinal muscular atrophy (SMA) since I was a child. This disease affects my muscles, so I can’t do anything. Therefore, I have always depended on family members for care of everything regardless of size. But this disease does not affect speech and intelligence. The road in a wheelchair will be much harder than others, and every inch of the body’s muscles will slowly degenerate...

Through the life of a volunteer, I have regained my goal, the meaning of life, and affirmed my own value. Now if I have time, I will help others with tuition or do some volunteer work.

I am a patient with multiple disabilities, suffering from disability age discrimination. I was hospitalized due to an illness in 2013. At that time, the medical staff also said to me: "You will definitely recover at such a young age." After staying in the hospital on the left for a month and a half, I have to enter the first nursing home on the left. From the winter of 2013 until now, my body has caused a lot of sequelae on the left, including: waist, feet, blood, and vision problems. Self-care relationship, from the age of 24 and a half when I was discharged from the hospital to now living in a nursing home for more than 6 years, living in a total of four nursing homes on the left...

Having experienced life and death, I am more courageous and actively participate in different types of volunteer services than before. Because I have died once, it is time for people to cherish life, hold tight and have time to survive.

A healthy body gradually deteriorated for no reason. Although she was looking for a doctor and the cause was not found, she worked in a special school before the onset of the illness, so she enrolled in special education instructor course development with ambitions, but unfortunately fell ill. Forced to give up the job that I love, everything I had was taken away all at once, leaving only despair...

"Unknown disease" makes Jiamin cherish every minute and every second, hoping that there will be no regrets and no regrets for the rest of his life, so he went to the world and the sea, doing everything, participating in "wheelchair fencing", "grass/hard ground bocce" and " "Wheelchair martial arts", "paragliding parachute"... etc.; more fortunate to be encouraged and assisted, so that she can dive into weightless water, enjoy leaving the shackles of the wheelchair, kiss the underwater world, and feel the moment of freedom.

Originally, I was a girl who loved to laugh. I just wanted to be an ordinary girl. However, a problem of academic pressure induced mood sickness and was diagnosed as early psychosis by a doctor. Since my family has a record of mental illness, it is in my own body. It’s not surprising that it happens. When the illness occurs, the emotions will get out of control. It seems that some people talk to themselves in the day, and other people talk about themselves as if they are in the Japanese family. They also tried to be imprisoned in the hospital and can’t go out. They often feel pressured in life. It's so overwhelming that I can't breathe.

Later, I got support from my family and friends and teachers to help and encourage me to return to school. Unfortunately, I couldn’t keep up with the progress of my studies. I was also influenced by my peers and lacked self-confidence. As a result, I gave up halfway and abandoned my studies. , I just went out looking for part-time jobs, often doubted

I am a patient with cerebellar atrophy, but it is not inherited in the family. It is a minority of idiopathic ones. It is a sudden genetic mutation, and it comes to me without warning. I have heard the stories of other patients. I don’t know if this is fate. They all love sports, and I am no exception. My dream is a football player.

This is a shipping company who has been in shipping for more than 30 years. The warehouse manager and dispatcher caused an amputated left leg due to an industrial accident. At that time, he was very disappointed after the amputated limb. He repeatedly sought to end his life and avoid becoming a burden to his family. Fortunately at that time My sons and daughters and my wife will never leave me, and they will accompany me through the troughs of my life, until I feel calm and regain the strength to survive.

When I was 3 years old, I felt that the ear boy could not hear the sound. Even if someone called me, I could hear it. Then when my mother knew about it, she immediately took me to the ear, nose and throat department or specialist, the doctor said The nerve line of my ear was pressed to the left, and I was referred to a hearing aid center for a hearing evaluation. Finally, my ear was diagnosed as deep to severe. The audiologist chose suitable earphones and made an eardrum for me. Until now, wearing headphones is equivalent to wearing glasses, but the listening aspect is clearer than before, but I have been relying on watching others to read their lips to understand what others mean.

Andy suffers from congenital spina bifida. Since childhood, he can travel the world and see different countries and cultures. Unfortunately, when he was 11 years old, he was diagnosed with cracks in the pelvis and exposed bone marrow. , And even more unfortunately, when he was 17 years old, his left foot was accidentally injured and infected with Staphylococcus aureus, and his feet slowly lost the ability to move.

Five years after the inconvenience, I was diagnosed with the rare disease "spastic lower limb paralysis". Affected by genetics and family pressure, I suffered from anxiety and depression a year later. Under the influence of paralysis of the lower body and emotional illness, I also lost my normal breathing, thinking, speech and movement abilities, and I feel that life is worse than death every day. Finally, one day because of a mood illness and a major emotional stimulation, I tried again to jump from a height to end my life. The bones, organs and blood vessels of my whole body were severely injured, and I was on the verge of death.

I have seen a lot of inspirational stories. A daddy with regrets will definitely give birth to an obedient and healthy child in the end. The whole family will be happy ever since, but my life is on the contrary, even I hope the child will call me Dad. For extravagant expectations?

No one wants to suffer from a bad illness, and the same goes for the 31-year-old Kelvin. Kelvin has suffered from 3 maladies since he was 3 years old, which made him weak and short in height. After suffering from cerebellar atrophy, it is more difficult to walk. He needs to use two trekking poles to support him every day. Although he actively faces the disease and leads a wonderful life, he admits that there is always a low ebb in his life, he has also been bullied and discriminated against, and even cannot find a job because of his illness.

Graduated from the Open University in 2011 and once worked in a testing company. At the end of October 2013, a double image suddenly appeared while working at the company, and then fell down because of the lack of tools, and was admitted to the hospital for repeated inspections. It was confirmed in mid-July 2014 that I was suffering from cerebellar atrophy type 3 (SCA3). Online literature says that SCA3 patients have a life span of about 10 to 20 years from the onset of the disease. There is no treatment so far. When I learned that I was suffering from this disease, I was only surprised for a moment.

Once I fell down suddenly while queuing. I thought it was a fall between the children, so I ignored it if I didn't care. Later, I found that my feet were weak, and I went to see a doctor immediately, but the doctor could not find any cause, but I would keep falling back when I gradually stood up, feeling very helpless and uneasy.

During my childhood in China, my knees were swollen and painful, my waist was stiff, and I was often painful at night, and I couldn’t sleep peacefully. My family took me to seek medical treatment but failed to be diagnosed and treated effectively. I couldn’t do many activities with my classmates during physical education in school. Playing and sharing the fun, but quietly walked to another crying, tears poured into my heart, that painful experience could not be expressed in words.

I was a premature baby and suffered from distress paralysis. When I was two years old, my mother found out that I still didn't know how to learn, so she took me for a checkup and found out that I was suffering from this disease. Because of my mobility problems since I was a child, I did not enter mainstream kindergartens like ordinary children....

In fact, I used to be a computer engineer. After I got my degree at a university in the United States, I planned to further study and become a doctor. I have been influenced by my parents since I was a child. Both of my parents are engaged in medicine, so I also want to engage in medicine...

Sometimes I will be overwhelmed by tedious work and feel frustrated. However, Xixi is my biggest motivation, and then move towards the goal after getting discouraged!

What we know is a drop, What we don't know, is an ocean.