When Xixi was very young, others would always comfort him and say, "God gave you a child like this because you can take good care of him!" I believe that he came to this home. He is happy because his parents love him so much. He, the family also accepts this severely mentally retarded child, but am I...happy?
Xixi started cramping at the age of seven months. The doctor's diagnosis was "infant cramps", which is the most difficult type of epilepsy to treat. Until now, he will have different forms of seizures every day. Before brain surgery, he would fall to the ground during the attack, causing scars on his forehead, eye corners and jaw. In order to take care of him not to fall, it made me exhausted, but more of it was uneasy and complained that he had made me lose my comfortable life!
There was a time when I followed others around asking God and worshiping Buddha, where there was a good doctor, I would go there, buy and eat whatever I would get better, and my life would revolve around these things. When my child’s condition didn’t get better at all, I felt that Angry and perplexed, tears will flow down my face when I think of his future!
It takes a long time for me to accept that my child is severely mentally retarded. Before joining Yan Xie, I knew from the school that there was a "Parents Association of Severely Mentally Handicapped Persons", but at the time I thought that Xixi was severely mentally handicapped? Severely mentally handicapped is simply ugly!
Later, because of my faith, I thought about the relationship between myself and my child and the future: instead of sighing and sighing, it is better to do something for him and the severely mentally retarded group when I am still capable. It is estimated that there are 70,000 to 100,000 people with intellectual disabilities in Hong Kong, and the severely intellectually disabled population is only over 10,000. It can be said that they are disadvantaged among the disadvantaged. Children cannot speak up and can only rely on their parents to fight for the rights and services they deserve.
In fact, as Xi Xi grew up and left special schools, with the current rehabilitation services provided by the government for people with severe intellectual disabilities, there was no opportunity for continuing education. The so-called activity centers and homes were just another cage. Is the most difficult time.
When I first joined Yanxie, reality and imagination were very different, because there was no meeting place and staff (a part-time worker was hired with funding from the Social Welfare Department last year), and all meeting and chores such as photocopying, mailing, moving and lifting were all The officers do it by themselves, and sometimes get overwhelmed by tedious work and feel frustrated. However, Xixi is my biggest motivation, and then move towards the goal after getting discouraged!
Putting into the work of the office seems to be a gratuitous effort, but in reality, I have gained more than I have lost: reaffirm my ability and value. I have been away from the workplace for many years because I have to deal with conference affairs and learn computer documents again; because I have to submit opinions to the government and regain my writing ability; because I have to fight for services and benefits in the Legislative Council and learn to express opinions concisely within three minutes at meetings . The most important thing is that I have achieved nothing in my life, but I still have a little ability to help others.
The child took me through the mountains and valleys of life, and walked side by side with fellow travelers on another track!
Because of you, I am happy!